Wednesday 26 August 2015

Blood Transfusion

Well after the fiasco that the last blog ended with Andy contacting our GP and it was arranged for me to go in for my transfusion on Thursday 6th August, I’d made it conditional that I’d only go in if Andy was with me, like he was going to let me go in on my own but I am so fretful almost panicky these days. Thursday morning and I’m quite forgetful now I’d already forgotten about going in to hospital. A call came in saying “An ambulance is on its way for you”, I started to fret again, “Andy I don’t want to go into hospital, please don’t make me, I won’t come out”. Andy reassured me, well he did his silver tongued salesman thing on me. “Hunny you know how breathless you’ve been the last couple of weeks? Well it’s down to low haemoglobin, you don’t want to keep feeling breathless do you?” I shook my head and I cried, “No” I answered, he squeezed my hand gently, “I won’t leave you I promise” he replied, “you promise?" I asked, he nodded, held my hand and bent over my cot sides and kissed my forehead then my lips, “I promise” I’m so emotional now, tears slowly trickled down over my cheeks, Andy asked Maureen for a tissue and she came over to wipe my tears away for me, it’s difficult for me to say this but my childhood with my own Mother wasn’t a bed of roses, we were a big family and at times she struggled to cope bless her, in latter years her own health has deteriorated and she’s needed caring for herself, my daddy and my brother Andy have been marvellous in their care of her under very trying times, until earlier this year we did our best to see Mum & Dad  at least once a month but I have never felt close enough to mum for cuddles, she wasn’t tactile like that, Maureen on the other hand as I’ve deteriorated has been here for me, she kisses me every morning and before she goes to bed, she sits here next to me and she strokes my forehead calmingly for me, though sometimes I snap “Ok, enough now, you’re doing my head in”, we laugh, I can only imagine that in full health and under different circumstances my mummy would have been here for me in the same way. Back to the reality of it, Andy saw the ambulance arrive and mentioned it, immediately in my head I went, “here we go again”.

Its traumatic being hoisted out of the bed on to the Ambulance Crew’s stretcher/trolley, interesting, I suppose it’s down to ‘Ambulance chasing lawyers/culture but the paramedics wouldn’t touch the hoist as “We’re not trained to use it”, thankfully Andy has the necessary skills and experience even though he’s never been trained to use it either… The paramedics have been here before and they’re amazed at the ramp, it makes life so much easier for them.

Whilst all this was happening Andy got a call from Mary the Staff Nurse on Ward 26, they’d had a call saying I am on my way in & to make room for me… Mary is lovely, she has an amazing smile and I can tell her affection is genuine towards me, I know Andy thinks she’s a babe and I’m certain he has a crush on her hehe, I don’t blame him… The reality is though Ward 26 is full and I have to dig my heels in, as in “Under no circumstances move any patient to make room for me, this is a ‘nice to do’ not 'need to do' Andy told Mary we would not be pleased if this happened. Mary knew the head of the Medical Evaluation Unit and the reality is this apparently is where I should be so she was personally taking my file down to MEU and the Ambulance crew were briefed to take me there not to Ward 26.

Andy followed in his car, this is a non-emergency so I know he may need to shoot off and I know despite my slight panicking that I’m in safe hands and I’ll see him shortly anyway.

In the MEU I’m warmly greeted and the team are expecting me, it’s incredibly busy in here. Once settled in to a bay it’s the usual observations, I have blood taken so that it can be matched for the transfusion, I’m ‘O positive’. I saw a doctor later on and he informed me I’d need two units of blood, the first would be transfused over two hours, the second over ninety minutes, hehe I’ll probably sleep through it, it’s what I do best these days.

Tests & observations kept coming. Around lunch time Jill Galvani, Director of Nursing appeared to say hi, how kind it was for her to come and see me. You’ll recall many blogs ago Andy was on the warpath ‘demanding’ a meeting with Arrowe park’s CEO, he’s not told you yet but.. He had his way and met with him also with Jill, there were also another four senior level people from other agencies involved in patient discharge and palliative care. Part of the outcome of this meeting has been a professional bond and level of respect between Jill and Andy and she has kindly extended that to regularly checking on how I am including this as Andy calls them hehe ‘Royal Visit’… You can always see the mix of query and ‘what is Ms Galvani doing on our ward trepidation’, then you can see the ‘Why is she visiting Julie?’ Andy always smiles with his people watching hobby lol, the reality is there is nothing sinister to the visit other than Jill wanting to say hi and to see me; we share a love of Joe Malone’s Pear & Freesia perfume. Jill informed me I was to be moved to Ward 26 later as three beds and been vacated (for the right reasons) due to discharges and she wanted me to be with ‘friends’ as in the team who cared for me for a month not that long ago, I’m grateful, whilst I’d have no qualms about going on any ward it’s nice to be going where I know people.



So my first transfusion started, they decided the easiest way to transfuse me was via a line already in my upper arm. The cannulas they slide into your wrists when they give you fluid or take blood etc can only stay in your veins for a few days, for poorly patients like me to save constantly ‘stabbing you’ hehe I’m kidding, well no I’m not, you do feel each needle insertion and, it’s a long story but I’ve few good veins to take blood from these days, often veins will ‘collapse’ making them no good for extracting blood, The line in my upper arm is different it’s called a ‘Picc line’ stands for Peripherally Inserted Central Catheter. These have to be inserted by specialists for a long line is feed through your veins until it gets to a larger vein in your or in this case, my chest. Once these are in they can be kept in for long periods of time, the nurses have to what they call flush the line once a week it has a neat little cap on it.
So, meanwhile back to the transfusion, being given the wrong type of blood can result in serious injury or even death so it’s a serious matter and two nurses cross check all the data on the paperwork and on the pack of blood, they have to record the batch numbers, the type and all sorts of other stuff, they must verbally confirm each point with each other its funny I’m not sure why it amuses me but some say yes, some say check or others hehe ‘I concur’ . You don’t really feel anything and I’m relatively sleepy anyway, the blood is meant to build up my haemoglobin levels which should give me more energy and stop the lethargy, watch out Mr Shute hehe.. By the time the first transfusion was over it was decided it was time to move me up to ward 26,  I’m almost mobbed with hugs and Kisses, I’m in just as the shift handover occurs, Mary, her face just exudes joy, hehe no wonder Mr Shute keeps bringing the team iced lollies. I’m teasing him, I’ve never minded him looking and I know he’s not going to start wandering now, lol he should be so sodding lucky with all these gorgeous nurses about – you’re approaching pension age Mr Shute! Hehe.. On a more serious note, yes I truly hope my frog prince finds happiness again one day..

It had already been decided earlier in the day that I’d be an overnight patient, just as well for it seems reserves of O positive blood are low in the blood bank so I cannot get my second top up until tomorrow morning anyway. I’m fretting for I don’t want Andy to leave me; common sense says he must even though the ward team were happy for him to stay with me for the night. I needed a clean nightie and in the end Andy made the decision, the lovely Lauren was with me in my bay and we both knew I was in safe hands, it was gone ten before he left the ward.

Mr Shute wants in with his little bit, suppose I’d better let him hehe.

It’s him here again… Sadly whilst the intention was for Julie to just let me have a waffle then for her to pick up the blog again she’s take a serious turn for the worst and it is back to me writing future blogs and finishing this one, it’s ironic for the next piece whilst I wanted to put it in, it’s probably best Julie doesn’t see it.

It had been a hard day, the days are so draining especially most mornings for it just goes carers, half hour break, Nurses then straight back into carers, one minute its 07.00 the next it’s one o’clock! Today was different for it was straight to Arrowe Park Hospital, there’s a lot of just standing around and its incredibly tiring daft as it seems, As they settled Julie in I shot up to ward 26 and saw the senior Staff Nurse Mary, yes as Mrs Shute says ‘She is cute’ but I’m a happily married man & Mary’s probably snapped up already anyway.  Mary is pleased to see me and I apologise for the earlier confusion and Mary was apologising for having no room on the ward, it’s truly no big deal but I’m old fashioned and prefer to do things like this in person. 

So all went to plan except for the blood bank being low on blood plus well its better Julie is transfused during the day. Julie is so fretful these days, very clingy, she knows she’s poorly she’s understandably scared; none of us mention the ‘dying’ word but we are acutely aware of the reality of things; things can totally turn on their head in twenty four hours now.

The transfusion went to plan on MEU and yes Jill Galvani came to visit which was lovely, the team in MEU were excellent coping well in difficult circumstances and under pressure, it seems we are a very unhealthy or a poorly nation. I know Julie is in safe hands especially on Ward 26 she’s had a restful day before she was moved up to Ward 26, on entering the ward, there is a mini stampede as the shift change had just happened, Staff Nurse Mary was heading towards us, what an amazing and genuine smile, she bent down and hugged Julie like a long lost friend, there were more hugs then the oh so bubbly Lauren was by Julie’s trolley side as she was wheeled onto the bay Lauren was on. I’m not sure what it is that Julie has but she has the ability to attract friends of all ages and status, she always has since the day I met her, the genuine love shown by this ward team demonstrates it to this day as does her newly found friend ship with Eve.

It had been a long day, Julie is still fretting and stressing and it’s getting late, I hadn’t realised just how late, the team had offered to let me stay with Julie, initially I thought I’d stay then I remembered Julie would need her overnight bag and a clean nightie I had to go home, it’s better that I leave Julie to the nursing team plus it’s not fair to the other five patients in the bay and I need my sleep, what I wasn’t prepared for was how walking into our empty home would ‘hit me’. I walked up the ramp and through the door a door I’ve walked through thousands of time, it’s a big house but it always has a ‘warm’ feeling about it. I walked into the dining room that now doubles as Julie’s bedroom, bathroom & lounge.. The emptiness of the bed hit me like a sledgehammer, I just broke down and sobbed, in that moment I knew this would be the reality one day, one day I will stare or sit by this empty bed knowing Julie will never be back in it. I made my way up the stairs to what was ‘our bedroom’ that’s become ‘my bedroom’ and cried myself to sleep, it’s subtle changes like this that have crept in over time, I need my sleep, I need to get back to focussing about Julie and not feeling sorry for me.

Friday morning and I’m on the ward early, they’ve not long served breakfast and Julie needed hoisting on to the commode, she’s afraid of the team hurting her, this is a different type of harness and yesterday in MEU without realising as Julie wasn’t quite in the harness properly one of the nurses decided to give it a quick tug, she meant no harm but the material of the harness whilst soft has firm edges for obvious reasons, pulling material in one direction against soft human skin can only have one outcome for a patient with a low threshold for pain, Julie screamed out, I had to intervene both to prevent further tugging but also to reassure and help Julie. I sometimes step in, I make no apology for this, if things aren't right like this staff need to be aware, Julie often says to me "you need to sit in the harness and be hoisted Mr Shute", to staff I'd ask you consider the impact of tugging or shoving etc... I try to stay out of the way most of the time but often Julie wants me there just for reassurance, do I enjoy sitting there with her once she’s on the commode? No not really but she’s my wife and she wants me there, it’s what I feel I have to do. On 26 I did forewarn the team just as a courtesy, I knew their level of care for Julie would mean minimum fuss and no pain. Mid-morning the latest unit of blood arrived and I took the opportunity to escape for half an hour, it’s going to be a warm day which means the ward staff will be baking, I dashed to Sainsbury’s and grabbed a variety of iced lollies (or as locals call them ‘lolly ices’) and ice creams on sticks and quickly dashed back with three carrier bags full, they’re mainly on offer so you can get a lot of lollies for your money. As I walked on the ward it was instant recognition of heat relief, they’re so grateful, I’m eternally grateful… Julie decided she wanted a pink magnum, what the lady wants, the lady gets...

Julie’s transfusion is almost finished and an ambulance has been called to take her home, again we have a stream of nurses wanting to hug & kiss Julie goodbye, it was only a short wait. The crew that turned up had been to our house for Julie before but this was prior to the ramp, they were pleasantly surprised how easy it was to get Julie’s stretcher in. Once in again I had to operate the hoist to get Julie back in to bed. It’s been a tiring two days, whether the transfusion helps or not time will tell….

 

 

 

 

 

No comments:

Post a Comment